We have decided to raise funds for 6 years old Zion Roman who is in need of a bone marrow transplant.
Zion was diagnosed at the age of 3 with a rare desease, Severe Primary Hyper IgM syndrome. It means he is immune deficient and ultimately needs a bone marrow transplant as a cure.
For the last 3 years there has been no success in finding a match for Zion on both a national and international searches.
He is currently on daily medication and also receives monthly infusions to help his immune system fight off everyday germs.
Zion has experienced physical development delays and was diagnosed as cognitively handicapped in April this year. He is on extensive physio treatment, needs speech therapy, occupational therapy and Zion attends a school for children with learning disabilities.
Time: 9:00 am - 1:00 pm
LocationBeacon Bay Country Club,